{"id":2662,"date":"2024-10-21T22:42:43","date_gmt":"2024-10-21T22:42:43","guid":{"rendered":"https:\/\/josephrauch.com\/therauchreview\/?p=2662"},"modified":"2026-04-14T01:40:21","modified_gmt":"2026-04-14T01:40:21","slug":"chronic-illness-bureaucrats-failed","status":"publish","type":"post","link":"https:\/\/josephrauch.com\/therauchreview\/creative-nonfiction\/chronic-illness-bureaucrats-failed\/","title":{"rendered":"Chronic Illness (and How Bureaucrats Failed Me)"},"content":{"rendered":"<div class=\"fusion-fullwidth fullwidth-box fusion-builder-row-1 fusion-flex-container has-pattern-background has-mask-background nonhundred-percent-fullwidth non-hundred-percent-height-scrolling\" style=\"--awb-border-radius-top-left:0px;--awb-border-radius-top-right:0px;--awb-border-radius-bottom-right:0px;--awb-border-radius-bottom-left:0px;--awb-flex-wrap:wrap;\" ><div class=\"fusion-builder-row fusion-row fusion-flex-align-items-flex-start fusion-flex-content-wrap\" style=\"max-width:1123.2px;margin-left: calc(-4% \/ 2 );margin-right: calc(-4% \/ 2 );\"><div class=\"fusion-layout-column fusion_builder_column fusion-builder-column-0 fusion_builder_column_1_1 1_1 fusion-flex-column\" style=\"--awb-bg-size:cover;--awb-width-large:100%;--awb-margin-top-large:0px;--awb-spacing-right-large:1.92%;--awb-margin-bottom-large:20px;--awb-spacing-left-large:1.92%;--awb-width-medium:100%;--awb-order-medium:0;--awb-spacing-right-medium:1.92%;--awb-spacing-left-medium:1.92%;--awb-width-small:100%;--awb-order-small:0;--awb-spacing-right-small:1.92%;--awb-spacing-left-small:1.92%;\"><div class=\"fusion-column-wrapper fusion-column-has-shadow fusion-flex-justify-content-flex-start fusion-content-layout-column\"><div class=\"fusion-text fusion-text-1\"><p>I feel something in the pit of my stomach \u2014 well, colon actually \u2014 that\u2019s ripping me up inside: anger. Anger over the lack of care people with medical issues face in this country. There is a lack of compassion and understanding toward those who are chronically ill. There is a blanket generalization given to those with chronic health issues claiming that all it takes is \u201ctaking better care of yourself\u201d to get past it. I would know because I am one of those people. I\u2019m chronically ill, and the system failed me when I needed them the most.<\/p>\n<p>In January, 2019, I was diagnosed with ulcerative colitis. Ulcerative colitis is an autoimmune disease that sparks ulcers in the colon (no brainer, given the name). It\u2019s in the same family as Crohn\u2019s disease and IBS. However, I see ulcerative colitis \u2014 UC \u2014 as a distant cousin the family. The medical community barely acknowledges it. Think of that one family member no one wants to talk to \u2014 that\u2019s UC.<\/p>\n<p>Growing up, I always had stomach problems (thanks Mom). But, when I was diagnosed, I was attending a college that was highly rigorous. The stress of maintaining my good status caused my stomach pains to persist so much to the point where I was barely eating, had blood in the stool and dropped about forty pounds over the course of three months. I received my diagnosis and was put on prednisone, which helped me for a considerable amount of time and I stopped taking it due to it being a steroid giving me long term effects, like hair loss. With all steroids, this was only a band-aid for a puncture wound.<\/p>\n<p>My symptoms started to gradually come back, and I went about my life, thinking it was just \u201cnormal\u201d since it wasn\u2019t as bad as before. I kept myself busy with work to distract me. I had a colonoscopy in September, 2021 and my doctor informed me my ulcers were the worst they had ever been. Despite this diagnosis, I ignored what he said. As long as I could still function, I thought it would be fine. Before you know it, I was placed in the emergency room due to an iron deficiency, and I was forced to take a medical leave from working. Recommended by my doctor, I decided to get on state disability.<\/p>\n<p>Looking back, it took me a long time to get the help I needed because I didn\u2019t want to admit that my illness was catching up to me. I thought I had finally made a transition to get my health and life back together. But, surrendering to my illness only made me get into other battles that would take up to a year. The One-Year War, I call it. It was in this one year that I really began to notice all the ways the corporations that be \u2014 Big Pharma and the government \u2014 play card games while the rest of us hope the odds are in our favor.<\/p>\n<p>Beyond surface level understanding, it takes a lot of observation to see how these big corporal entities play a role in our country. They were the yin and yang in my One Year War. After my emergency room visit, I filled an application with the California State Disability office. Little did I know I was about to be subjected to being kept in the dark of my own survival. To start, I filed my application in January, 2022 and it didn\u2019t go into effect until April. There was a whole three month gap where I didn\u2019t receive a penny. I left my minimal 9-5 job ultimately to not have a consistent cash flow.<\/p>\n<p>This deficiency became a consistent pattern throughout the One-Year War. I would receive a huge payment and then go months without being caught up on. Calling the phone number didn\u2019t help. I would have to jump through hoops to follow the telephone trail it led me on. If I had to hear \u201cwe care about your call\u201d again, I would\u2019ve probably gone on a social justice-type rampage. It took me driving down to the San Diego office \u2014 I live an hour away \u2014 to get any kind of response. The ordeal makes me grateful I don\u2019t live in the mountains.<\/p>\n<p>The One-Year War also taught me that the medical industry is always playing cat and mouse with its patients. To start, I was first prescribed Humira, which is a self-injection medicine I would have to take weekly. I hate needles, so I feel as if I should be given financial compensation for the emotional turmoil alone.<\/p>\n<p>On a serious note, dealing with my prescription was also difficult. My insurance would veto it because it was \u201ccovered\u201d by them, which prompted my doctor\u2019s office to send over the prescription repeatedly to the CVS Speciality pharmacy. The kicker is that Humera ultimately didn\u2019t work for me. The medicine would fade away in my system before it could start healing the ulcers. After spending 10 months on it, I had to go back to the drawing board, and my doctor\u2019s office wasn\u2019t exactly eager to help.<\/p>\n<p>Around the holidays, I went in for a routine check up with a new doctor (I came to see all the doctors in the office throughout the One-Year War). The Humera had only provided a little release. Instead of running to the bathroom up to ten times a day with mostly bloody stools, I went down to 5-6 times with bloody stool. I mentioned it to the new doctor, who took it as a sign that I was \u201cprogressing\u201d and wrote to the State Disability that I was ready to go back to work when I wasn\u2019t. I appreciate doctors for what they do and understand that they are constantly receiving new information on things, but the fear of not knowing how I was going to have money became too much. After much back and forth via phone calls and last minute blood work, I proved to the other doctor just how not ready for work I was and how something needed to change.<\/p>\n<p>I spoke to the main doctor of this office, who decided to put me on Rinvoq, a tablet medication. When I tell you the difference was night and day, it\u2019s not an exaggeration. Rinvoq has ultimately put my life on track, and I\u2019m grateful to that doctor for taking initiative. If only it had happened sooner.<\/p>\n<p>As I reflect on the One-Year War, I can think of so many moments where getting my health on track could\u2019ve happened sooner. It makes me feel like I wasted a whole year. There are people who spend years of their lives fighting these battles. There\u2019s an aura of superiority from these higher institutions that make chronically ill people feel unworthy of getting the help they need. Too much money is at stake for these institutions to be frivolous with it. As Cardi B once said, we can fund two wars but not healthcare. Currently, both Democrats and Republicans don\u2019t support Medicare for All. While this proposal has its pros and cons, this issue is important and exploring a third-party option would potentially help put this into place. Frankly, given that both major parties are at a standoff, it\u2019s better to shake the table than worry about ruining it.<\/p>\n<\/div><\/div><\/div><\/div><\/div>\n","protected":false},"excerpt":{"rendered":"<p>After Ian was diagnosed with ulcerative colitis, he learned how the U.S. healthcare system fails millions of people with chronic illness.<\/p>\n","protected":false},"author":17,"featured_media":4342,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[25],"tags":[48],"class_list":["post-2662","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-creative-nonfiction","tag-short-creative-nonfiction"],"yoast_head":"<!-- This site is optimized with the Yoast SEO Premium plugin v27.6 (Yoast SEO v27.6) - https:\/\/yoast.com\/product\/yoast-seo-premium-wordpress\/ -->\n<title>Chronic Illness (and How Bureaucrats Failed Me) - The Rauch Review<\/title>\n<meta name=\"description\" content=\"Join Ian on his journey of discovering his chronic illness, applying for disability, and learn how hard it is to get off.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/josephrauch.com\/therauchreview\/creative-nonfiction\/chronic-illness-bureaucrats-failed\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Chronic Illness (and How Bureaucrats Failed Me)\" \/>\n<meta property=\"og:description\" content=\"After Ian was diagnosed with ulcerative colitis, he learned how the U.S. healthcare system fails millions of people with chronic illness.\" \/>\n<meta property=\"og:url\" content=\"https:\/\/josephrauch.com\/therauchreview\/creative-nonfiction\/chronic-illness-bureaucrats-failed\/\" \/>\n<meta property=\"og:site_name\" content=\"The Rauch Review\" \/>\n<meta property=\"article:published_time\" content=\"2024-10-21T22:42:43+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2026-04-14T01:40:21+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/josephrauch.com\/therauchreview\/wp-content\/uploads\/sites\/7\/2024\/08\/chronic-illness-piece-1.webp\" \/>\n\t<meta property=\"og:image:width\" content=\"1190\" \/>\n\t<meta property=\"og:image:height\" content=\"1500\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/webp\" \/>\n<meta name=\"author\" content=\"Ian Donley\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:creator\" content=\"@ian_s_donley98\" \/>\n<meta name=\"twitter:label1\" content=\"Written by\" \/>\n\t<meta name=\"twitter:data1\" content=\"Ian Donley\" \/>\n\t<meta name=\"twitter:label2\" content=\"Est. reading time\" \/>\n\t<meta name=\"twitter:data2\" content=\"6 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\\\/\\\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\\\/\\\/josephrauch.com\\\/therauchreview\\\/creative-nonfiction\\\/chronic-illness-bureaucrats-failed\\\/#article\",\"isPartOf\":{\"@id\":\"https:\\\/\\\/josephrauch.com\\\/therauchreview\\\/creative-nonfiction\\\/chronic-illness-bureaucrats-failed\\\/\"},\"author\":{\"name\":\"Ian Donley\",\"@id\":\"https:\\\/\\\/josephrauch.com\\\/therauchreview\\\/#\\\/schema\\\/person\\\/511f7a62f3d41f65a543595de6dcb6ed\"},\"headline\":\"Chronic Illness (and How Bureaucrats Failed Me)\",\"datePublished\":\"2024-10-21T22:42:43+00:00\",\"dateModified\":\"2026-04-14T01:40:21+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\\\/\\\/josephrauch.com\\\/therauchreview\\\/creative-nonfiction\\\/chronic-illness-bureaucrats-failed\\\/\"},\"wordCount\":2345,\"commentCount\":0,\"publisher\":{\"@id\":\"https:\\\/\\\/josephrauch.com\\\/therauchreview\\\/#organization\"},\"image\":{\"@id\":\"https:\\\/\\\/josephrauch.com\\\/therauchreview\\\/creative-nonfiction\\\/chronic-illness-bureaucrats-failed\\\/#primaryimage\"},\"thumbnailUrl\":\"https:\\\/\\\/josephrauch.com\\\/therauchreview\\\/wp-content\\\/uploads\\\/sites\\\/7\\\/2024\\\/08\\\/chronic-illness-piece-1.webp\",\"keywords\":[\"short creative nonfiction\"],\"articleSection\":[\"Creative Nonfiction\"],\"inLanguage\":\"en-US\",\"potentialAction\":[{\"@type\":\"CommentAction\",\"name\":\"Comment\",\"target\":[\"https:\\\/\\\/josephrauch.com\\\/therauchreview\\\/creative-nonfiction\\\/chronic-illness-bureaucrats-failed\\\/#respond\"]}]},{\"@type\":\"WebPage\",\"@id\":\"https:\\\/\\\/josephrauch.com\\\/therauchreview\\\/creative-nonfiction\\\/chronic-illness-bureaucrats-failed\\\/\",\"url\":\"https:\\\/\\\/josephrauch.com\\\/therauchreview\\\/creative-nonfiction\\\/chronic-illness-bureaucrats-failed\\\/\",\"name\":\"Chronic Illness (and How Bureaucrats Failed Me) - 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